Godfrey Research Team

Permanent URI for this collectionhttps://digital.lib.washington.edu/handle/1773/48146

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    Patient-Centered Outcomes Research Training Manual: Helping researchers initiate and maintain patient-engaged research teams
    (University of Washington Department of Family Medicine, 2021-12) Godfrey, Emily; Pam, Molly; Rattiliff, Brittany; Al Achkar, Morhaf; Cystic Fibrosis Community Advisory Board
    The goal of this Training Manual is to promote patient engagement by increasing the number of Patient-Centered Outcomes Research (PCOR) research teams and improve the quality of participation of the patients, caregivers and other community stakeholders who engage with researchers. This PCOR Training Manual aims to do this by providing discrete steps, tools, and resources that teams can take to successfully integrate and maintain partners in research. This document is geared towards researchers and healthcare providers working within academic institutions. Because institutional and program environments vary so greatly, it is possible that some guidance may not be applicable in every setting. Our overall goal is that the individual PCOR champions reading these pages will benefit from and use this PCOR Training Manual as a starting point at their institution to help ensure successful engagement of new stakeholders onto the research team. This Training Manual is primarily informed by patients, caregivers, community members and researchers that represent the Cystic Fibrosis (CF) community. The development of this Training Manual was guided by the Quality Implementation Framework (QIF). The QIF identifies four phases of implementation, which we have adapted to the following steps: (1) Prepare, (2) Launch, (3) Implement, and (4) Monitor & Sustain.
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    ACCESS, DELIVERED: A Toolkit for Providers Offering Medication Abortion
    (University of Washington School of Medicine Department of Family Medicine, 2021-05-11) Fiastro, Anna; Wells, Elisa; Coeytaux, Francine; Godfrey, Emily
    This Provider Toolkit offers a step-by-step guide for initiating a modern medication abortion service within your primary care practice. It provides information on setting up the service, patient-centered standards of care, and resources for understanding federal and state regulations on abortion services. This resource is part of Access, Delivered: an initiative to create new channels of abortion access in the U.S. in partnership with Plan C (plancpills.org) and the University of Washington Department of Family Medicine. As part of the initiative and under the leadership of Dr. Emily Godfrey, the team uses implementation science methods to inform, improve, and share innovative models of medication abortion care for primary care practices. In addition to regular updates to the Provider Toolkit, we will evaluate the acceptability and feasibility of this model among providers and medication abortion users. The COVID-19 pandemic has dispelled the myth that physical clinics are needed to safely provide early abortion care. Primary care and other clinicians have a unique opportunity to shape the future of abortion access in the United States by using “no test” protocols and providing service via telemedicine with pills mailed directly to patients. The Provider Toolkit Third Edition includes key updates regarding changes to the FDA mifepristone regulations and the Supreme Court decision in Dobbs v. Jackson Women’s Health Organization.