Supporting Harm Reduction Programs Team (SHaRP)

Permanent URI for this collectionhttps://digital.lib.washington.edu/handle/1773/49483

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Syringe Service Programs Indicators Implementation
(2024-07-16) Lesly-Marie Buer; Sarah Deutsch; Sara Glick; Elise Healy; Kelly Knudtson; Brittany Price
Who is this guide for? The SSP Indicators Implementation Guide provides basic data points that a wide variety of SSPs could collect to monitor and evaluate their programs. This guide is focused on basic services and may not include some services that are becoming more common at SSPs. While this entire guide is likely useful for funders, government agencies, and others who require data from SSPs, the “Considerations for Funders” section is directly focused on recommendations for those who require these data. How do I use this guide? There are different ways to use the SSP Indicators Implementation Guide. SSPs and funders may read this guide through to understand the context, methodologies, and broader recommendations for data collection that inform why we think these indicators are important as well as good practices for data collection and analysis. We’ve also divided the guide into sections if only a few domains of indicators are of interest, or if a section or two is to be repeatedly referenced, while other sections are read once. We do recommend reading all the information in an indicator section before using that indicator.
REDCap Basics for Syringe Service Programs
(2024) Kelly Knudtson; Brittany Price; Elise Healy; Lesly-Marie Buer; Sara Glick
This is a short guide for harm reduction programs and syringe service programs (SSPs) considering using REDCap for their data collection and management. It reviews basic information about REDCap, strengths and challenges for use with SSPs, and the main ways to access REDCap. The SHaRP team has considerable experience using REDCap and working with organizations to build out REDCap systems. However, given the wealth, variety, and ongoing evolution of guidance on REDCap’s capabilities, this guide should not be considered comprehensive or airtight. Finally, this is not a promotion or endorsement of one particular company, software, or product by the Opioid Response Network (ORN), SAMHSA, or the SHaRP team. Further, this is not a recommendation of REDCap as the best software for SSP monitoring and evaluation. There is no one software solution that will work for all SSPs. Many complex factors figure into what software choices will work best for each individual program.
Population Size Estimation of People Who Inject Drugs: An Overview of Methodologies
(2023) Diana M. Tordoff; Adam Palayew; Brittany N. Price; Courtney McKnight; Don Des Jarlais; Elise Healy; Kelly Knudtson; Katelyn Benhoff; Lesly-Marie Buer; Sara Glick; Sarah Deutsch
This document provides an overview of the different methods and considerations for estimating the size of the population who injects drugs. It is primarily intended for local health departments, academia, and other community-based organizations.
Participant Input in Harm Reduction Programs
(2023-03-27) University of Washington Supporting Harm Reduction Programs (SHaRP) Team
This short document offers an overview of participant input at SSPs and a range of resources for harm reduction programs to consult when building or changing their participant input processes.
Monitoring and Evaluation: A Toolkit for Syringe Services Programs
(2023-09-22) Katelyn Benhoff; Adam Palayew; Brittany N. Price; Courtney McKnight; Don Des Jarlais; Elise Healy; Kelly Knudtson; Lesly-Marie Buer; Sara Glick; Sarah Deutsch
The purpose of this guidance is to help syringe services programs (SSPs) and other harm reduction programs in establishing and maintaining data collection practices for program monitoring and evaluation. Programs may find this information useful if they have questions about the types of data they might collect, how they might record it, and how they might test out their methods with staff and participants. This guidance is part of a larger Monitoring and Evaluation Toolkit for SSPs that will serve as a resource for programs in all stages of the monitoring and evaluation process.
Leveraging Informal Qualitative Data Collection and Use at Syringe Services Programs
(2023-03-27) Elise Healy; Bayla Ostrach; Arianna Means; Adam Palayew; Brittany N. Price; Courtney McKnight; Don Des Jarlais; Kelly Knudtson; Katelyn Benhoff; Lesly-Marie Buer; Sara Glick; Sara Deutsch
This document provides a brief overview of some informal approaches to qualitative data collection and analysis. Specifically, this document focuses on suggestions for how to create potential systems for informal qualitative data collection and analysis at syringe services programs (SSPs), including how to develop an overall objective for data collection. By “informal” data collection, we mean data that can be largely generated from routine service interactions as opposed to formal research activities, such as in-depth interviews, focus group discussions, or community based participatory research.
Brief Overview of Data Privacy & Security Considerations at Harm Reduction Programs
(2024) Sarah Deutsch; Sara Glick; Elise Healy; Kelly Knudtson; Lesly-Marie Buer
This document introduces issues data privacy and security considerations for SSPs and harm reduction programs, including the defining anonymous services and confidential services, a brief overview of HIPAA and covered entities, good practices for data privacy and security, considerations for linkage to care data, and considerations when reporting out data.
Institutional Review Board (IRB) Guidance for Harm Reduction Programs
(2024-09-19) Bayla Ostrach; Lesly-Marie Buer; Brittany Price; Elise Healy; Katelyn Benhoff; Kelly Knudtson; Sara Glick
This document is to help harm reduction programs understand what an Institutional Review Board (IRB) is, what IRBs do, and when to submit a data collection plan to an IRB. We provide an overview of IRBs, explain what it means to collect data from human subjects, discuss the benefits of using an IRB, offer ways to access an IRB, and tell you what to expect when submitting for IRB review.
Summary of the Evidence for Needs Based Syringe Distributions
(2023-07-20) Deutsch, Sarah
This is a summary of the evidence supporting needs-based syringe distribution as an evidence-based best practice. This summary can be used to understand key messages about needs-based distribution to support community engagement and internal advocacy.
Estimating Individual Syringe Coverage at Syringe Services Programs
(2023-07-20) Buer, Lesly-Marie
The purpose of this guidance is to help syringe services programs (SSPs) in collecting and analyzing data on individual syringe coverage for their participants. Syringe coverage is an indicator that can help SSPs and other stakeholders estimate if people who inject drugs have enough syringes to reduce risks of infections and vein damage. This guidance is focused on calculating syringe coverage for the participants of one program and for sub-groups of participants of a program (e.g. participants who are unhoused). Health departments and researchers who work with SSPs could use this information to meaningfully engage with harm reduction staff to survey people who inject drugs and assess resource gaps.
Collecting Demographic Data at Syringe Services Programs
(University of Washington Supporting Harm Reduction Programs (SHaRP) Team, 2023-05-25) Deutsch, Sarah
This document introduces some issues for SSPs to consider when writing questions to collect data about race, ethnicity, and gender in order to improve accuracy, in accordance with good practices to prioritize participant safety and protect their privacy. The document also includes tips for training staff and conducting analyses.
Good Practices and Ethical Data Collection at Harm Reduction Programs: A Brief Summary
(University of Washington Supporting Harm Reduction Programs (SHaRP) Team, 2023-06-28) Buer, Lesly-Marie
This guidance is for harm reduction programs and for funders and others who require data from programs. This is a brief summary of good and ethical data collection and data use practices in harm reduction programs. The guidance may help programs evaluate their data collection and use practices as well as help funders and others who require harm reduction data to review which data they require.
Using Unique Identifiers Within Syringe Service Programs
(2023-03-10) Deutsch, Sarah
This guide is intended for syringe services programs (SSPs) and SSP funders to support their understanding of data collection and monitoring. It provides an overview of the benefits and drawbacks of implementing unique identifiers (UID) as a method of data collection. The guide includes considerations for SSPs considering implementing a UID system and considerations for funders who are considering requiring individual-level data from grant recipients.

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